Keto flu: symptoms and relief

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November 19, at 2: Doctors get very little class time on nutrition. At the same time, its interaction with CB1 receptors has shown to increase metabolism and promote weight loss. I knew going into this there was no quick fix, so I am prepared to deal with this until I am clean. There are a lot of wrong ways to do keto though, and doing the diet correctly has a moderate learning curve.

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It was just too restrictive. I see too many stories like that. The blogger I wrote about, all the studies, most participants had dropped out at 6 months.

No study I have seen has shown anyone who has stayed on it for 10 years, 15, 20, 30, 40 years. If you know one, please let me know! Elizabeth lays it all out quite nicely — my favorite part is having almost no cravings whatsoever — talk about freedom! On the other hand, being in ketosis does make low blood sugars less negative as an experience. This is not unawareness but it is less reactive. The crazy thing is it is not hard, if it matters. Sure I can see it being hard for someone who does it to lose weight, then when they get closer to their ideal, they want to have treats, etc.

Thanks so much for starting this conversation and continuing to explore and learn along with the rest of us. The comments defending the keto diet suggest that the individuals are successfully using the keto diet to help them maintain a healthy weight and a healthier A1C level. The individuals also suggest that they view it as a way of life rather than a diet. This is good news for many of us who are facing the question of whether it will be helpful and necessary to reduce carbohydrate intake to keto producing levels in order to halt or reverse the onset of type II diabetes.

I think like those individuals, Tami is speaking from her own personal experience where she had success losing weight, but had difficulty maintaining the keto diet long-term.

I am sure that though you have been successful, you can understand that there are many who might find it difficult to maintain. I too have been given very bad guidance by Medical Doctors who lean on old Med School information to practice medicine rather than continuing to broaden their knowledge base and learn more about nutrition.

Those years are gone and the destruction to my body is not reversible. But I think that expressing anger toward those who disagree with our personal experience, is not solving the problem. Hopefully we can change the ADA guidelines by respectfully urging them to reconsider their position based on the sheer volume of the comments they receive from successful people like you, who are living the keto diet lifestyle and living better.

I commend you for becoming your own best health advocates. Thanks for your encouragement and your passion. And thanks to Tami as well for sharing her personal experience and the information she had collected.

We all have to be true to what we believe and we all have a right to come to our own conclusions. It is good to know that there are success stories out there. I wish you all good health and continued success. The system is failing so many of us. I will only believe diabetic advice from diabetics. Thank you for your wonderful comments Marcia. To share more about me personally with you all…I am not a completely non-diabetic Certified Diabetes Educator.

I tested my own A1c and found it was 5. There have been years when my A1c dropped to a normal level of 5. My last A1c in May was 5. I feel it everyday, I wonder what my A1c is going to be just like you every 6 months when I go to have it drawn. My A1c did jump to 6. The constant pain and inflammation for 6 months caused the increase. Once I had the manipulation done, completed physical therapy and the pain was gone, my A1c dropped back to 5.

Most already wear an insulin pump and continuous glucose sensors CGMs also. When I first became certified on each new pump and CGM, I would wear them and check my BG times per day for weeks, not only to learn the technology really well, but to gain a sense of how my patients must feel having to wear them 24 hours per day.

These are the units where most of the people with diabetes are, so I had seen every horrific complication that diabetes can cause. We really do only want to try and share the knowledge we have through seeing thousands of different patients with complex issues over decades with all of you. Physicians jump at the chance to have a CDE see their patients in their practice or in the hospital because they know our value. They know how thorough we are when assessing their patients and often find issues that may have been overlooked for years.

We live and breathe it and are very passionate about helping people overcome their hurdles. I do hope sharing some of my personal experience with all of you will help, but I am here if you all have more questions anytime! I have type 1 diabetes, diagnosed in when I was 24 years old. I have to say that following a keto diet has made managing my diabetes A LOT easier.

Trying to manage by covering 45g of carbs per meal, then watching my BG spike, then plummeting soon after, was a daily norm for me. If you have diabetes, you know how fatiguing of a disease it can be. That alone tells me that keto is working for me.

I hope my story has helped someone in some way. Keep up the good work. And, I have to say again, choosing the keto way of life as a type one diabetic is a lot easier than one would think, right?!.

It is so rewarding, as you point out, and actually quite easy lose the carb cravings and enjoy eating everything that you can! Also the decrease in inflammation is awesome. Fruit is tasty and enjoyable, but it is not a necessity. Also, there are plenty of vitamins and minerals in vegetables and nuts and seeds and eggs, etc. Fruit is mostly sugar, not mostly nutrition. I love keto and I wish someone could have made me see the light many years earlier than I did.

I was diagnosed in with Brittle Type 1 diabetes, peripheral and autonomic neuropathy, and Hypothyroidism. A short time later with Gastroparesis due to the nerve damage from diabetes. Since then, I had followed every guideline and rule that the Endocrinologist and Primary Care Doctors had told me to follow. In fact, I was gradually getting worse. So many ups and downs. Extreme highs bgl to seizures from crashes drop from to 13 in no time.

It was a constant battle with adjustments in insulin intake and different insulins NPH, R, Novolog, Humalog, Lantus , carb intake, exercise and one contributing factor was the Gastroparesis. Meds were taken for the Gastroparesis but I always had side effects from meds. I was kicking a dead horse and I told them this. My sister and mom had come across the ketogenic way of eating and it dramatically improved thier lives.

Mom was diagnosed way back with Type 2 and within a week or two she was off of her meds completely. I was totally interested. So, I decided to go for it on April 17, I did go through some rough patches of what they call Keto Flu.

It did pass after a couple weeks. I was gaining so much energy like never before as well as mental focus. I was on a sliding scale of Humalog or Novolog. From units per meal and then there were the corrections throughout my day some daily totals could be up to 40 UNITS! No more nights up stinging, burning and RLS restless leg syndrome.

So, in my life, there are no questions or hardships on whether I can get off of this way of eating. If someone truly wants to have a better life, they can. I am in the uk and a diagnosed t2d. I am also a nurse, although I am in end of life care.

Up until my diagnosis I am ashamed to say the I believed in exactly th. Our health service actively promotes a carb rich diet for t2d. It was not until I did some actual research and looked at the science that I came to see that what I had been taught and what I really did believe to be the best advice was quite simply wrong.

I am not going to go on about the benefits of keto, because everyone else has admirably covered that, but I would like to address some comments made in the article. One simple thing is that at the beginning it says that most of the vegetable s are root veg. Also, as I believe is mentioned, this diet has been around for along time and was the only way to treat diabetes. And some people did die. However, people still end up dead from t2d even after all the diet advice from educators and with all that pharmacy has to offer.

An industry which gains nothing if people just choose to eat less. But has lots to gain if we just keep taking the tablets. It is a very useful tool for epilepsy. It is extremely successful in reducing the number of seizures per day, mainly in children but also in adults. I am sure that followers of the epilepsy diet, which has been used since the s have not all starved to death.

Iwould also think that the followers of this diet are also motivated to stay on it, not eat a slice of birthday cake and keep all thier brain cells. I think what bothered me most about the article was the way in which the writer has put her own fears about living without cake onto the shoulders of any diabetic she might treat.

I must admit that when I was researching this diet I did worry that I would not have the stamina, but the thought of going blind is a useful motivator. Iwould hope to meet a diabetic nurse in the uk who was open minded about keto, but that has not been my experience as a patient. As a nurse speaking to colleagues as an equal and frmy experience has been very different. All have said they would do keto.

It is very difficult to admit that something you have believed to be true is wrong. Even harder when you have made your living by telling people that you knowhow to keep them healthy when in fact your advice has done the exact opposite. But that is no reason not to research, look at and try and understand the science.

And maybe change your mind. They have amazing gut health and no t2d. Would you like to guess at the type of diet they follow? This would be the caveman diet that the writer mentions, and yes these people might not live as long as us but the cause of death is never a lack of motivation to stay on a keto diet. This is what some doctors ask for…essentially asking for the Ketogenic diet and most of my patients are in shock! One slice of cake is certainly not going to harm anyone with diabetes and hopefully you know enough about carbohydrates and their short term effect on BG levels to know this too!

Are you a Neuro RN? TheDiabetesCouncil did just post another article where 25 Registered Dieticians weighed in regarding the Ketogenic Diet, so I would encourage you all to check that out! It takes a very special, highly motivated patient to maintain this type of diet for the rest of their life. If you are one of those people, good for you! I wish you well! I guess I must be a very special, highly motivated patient then. I, of course, would never have said that about myself.

My high motivation is trying to get over the hatred of food that being Diabetic gave me. Even to the extent of telling me to not include the tsp of agave that I was having in my coffee once a day because sugar is sugar. I was diagnosed as T2 diabetic in Jan with an A1C of I come from a family dominated with T2 diabetics. And fasting usually in the low 80s.

Diabetic complications run rampant in my family. Kidney disease and dialysis, retinopathy, neuropathy, etc, Two days ago my brother had all of the toes on his left foot amputated. Is the diet hard to follow. Of course it is! As for what an ethical dietician would recommend. The one I was sent to had me on 45g net carbs per meal and 15g per snack 3 times a day.

I was supposed to eat at least every 4 hours. I still have the sheet he gave me. He also told me that I was in horrible shape, that I would need a lot of medication, and that because I was T2, insulin would do nothing for me.

I still remember walking out of the building after. I felt like shooting myself. My brother had just gone blind from retinopathy 2 months earlier. There was no hope for me. High numbers were inevitable. I followed the guidelines I was given with little improvement and a lot of depression. I now do 30g total not net carbs a day and no medication with an A1C under 5.

Most dieticians I have met are over rated and under educated. This article somewhat proves me out. Congratulations on your accomplishments. I have been in Ketosis for a couple of months now. I have lost 28 pounds. No sugar No Bread Nothing from a box lol. Only good fats and Meats and good veggies dark greens mostly and a few macadamia nuts now and again and a few berries now and then. I think even the dieticians being human are also addicted to sugar and unable to give it up so they play down ketosis unconsciously because they are just jealous!

I am sorry you had this experience. I feel that this educator was not giving you good advice. All my women who want to lose weight are recommended to consume 30 grams of good carbohydrates at each meal, and 15 at each snack. If you were not trying to lose weight, I would have recommended I find this is all it usually takes to begin to lose some weight as you start to get active. Patients set their own goals with motivational help from their Certified Diabetes Educator.

Our intent is never to insult, and you should not have gone through that. It sounds that you have now found the right path. There are many CDEs who could help you, so see what tools and motivation others may offer. Many CDEs are also diabetic. Keto Diet is NOT strictly 20 grams of carbs per day. Not only are you biased but you are not being truthful. Many people can consume 40, 50 even 60 and 70 grams of carbs per day and stay in ketosis. It depends on the person.

Age, size lifestyle and exercise all factor into how many carbs can be allowed and maintain ketosis. It is ok to not recommend a diet but when you leave out important aspects you do both your readers and yourself an injustice.

You even have root vegetable and a picture of a carrot. Carrots are not part of a keto diet and as far as I have seen never were. They have 2 much sugar content and are discouraged except in very small amounts. Are you sure you tried it? Great article in many ways but outdated in others. I think that is missing the point entirely.

So many people are getting their triglycerides down, losing weight reducing stroke possibilities lengthening their very lives. It is just not fair to not at least point out a few of these things as much as the risks you made sure to point out. How about the risks of not doing something?

How about the list of people that found this and turned their lives around. Also, I know several people who have been doing keto for years. Hello John, I will speak with the editor about switching out the picture of the carrot. I will tell you the story of a friend of mine, whom I worked with. He has a website. You may view it here: I think that he is some proof that yes, it does work. And it may be that some people do need keto.

I have had reversal with regular ADA diet in my clinic. Not just a few! However, I just want for keto dieters to find a clinical trial. We do need more information. We must understand what happens in the long term on keto diet. I personally did Atkins years ago, which was 20 grams. I had a very hard time to stay on it. I lost 20 pounds, and then I did gain it back. I just could not live without some more carbohydrates than this allowed. It seemed I was out of it at 22 carbs.

Anyway, this was not for me. Maybe it is for you. No one is saying that one should never go on a keto diet, but we are wary of it. We need more science behind it. Therefore, I am just going to put this out here now. I will paste it down the page so that others may see it. They are taking participants. Then we can be more positive about it, and recommend it if the science is there. Here is the link to the clinical trial. Thanks for your comments:. What about those of us who are not, or never have been, obese??

There in lies the first problem. How long can it be maintained? The real question is, how long is one committed to changing their life, and how strong is their desire to do it. They require a life-style change. Unfortunately, many first-world daily diets namely American incorporate many foods that are addictive which can cause cravings. And yes, the cravings are scientifically prove-able, and have been proved. Conditioned living if you will.

There are many cultures on this planet that DO NOT grow up eating as many carbs and sweets as the American Diet, and do perfectly fine without all the sugars and carb cravings. And incidentally, they also lead healthier lives too… Go figure.

Fats are the main source of calories with it—NOT protein. Fats and proteins ARE essential for the body. The 20g of carbs are for net carbs, NOT total carbs.

With fats being my main source of calories, my body and energy levels have never been better. When I educated myself on it and understood the science behind it, it was clear to see why my joints started feeling better, and ailments started to go away. I believe that nature teaches us in wonderful ways about what works. Take the four seasons for example. I workout a lot, and a focus of mine is increasing muscle mass and strength. I go about 3 weeks of being in keto, and then for a couple of days, I eat whatever I want.

That means, I can eat cake, cookies, pies, whatever I want, for those two days. I even get to enjoy birthday cake ;. Then after that, I go back to keto. We just have to understand how to listen to them. Hence the many ailments and medical conditions that keep increasing. The point is, there are many variations of following a ketogenic way of eating, and it DOES require a life-style change. Just like any other recommendation from a dietician or educator.

Here is the link for the clinical trial: I am a T2D, finally fully keto starting at the end of March. I am down 28 lbs. My goal is 50, so I am feeling encouraged and fitting into smaller sizes already. In May my A1C was 5. I believe that is fairly accurate based on my blood sugar readings, which are staying well below I am sleeping better, my emotions are very even, I have a noticeable improvement in my energy level, and I am enjoying what I eat day to day!

The keto lifestyle sounds daunting, but it really is not. One thing many fail to mention is the hormonal shifts that occur that regulate your appetite. Give this a little time, and you will be astounded at how easy it becomes to pass on the stuff you found addictive previously. I will refer you to the comment to John J Dozier, Jr above.

Here is the link to the clinical trial:. Thank you for this info. I will be copying the link to send to some folks ready to jump on this new trend. He was unable to speak with me so I spoke with his wife. The man had come in after having a TIA. He was a diabetic, as well. The wife told me that she had her husband 9and herself on a keto diet.

I understand when folks are worried abut their loved ones they can get pretty emotional. She tried to speak with the resident and his wife and got the same treatment. He had one in 3 days.

Unfortunately with this stroke, he got anew diagnosis of severe dysphagia. SLP tried and tried but he would aspirate on everything. He had to be pegged. He was brought back to the facility. The wife was taught how to feed him through the tube. He left the facility and passed quietly about 3 weeks later.

I reached out to the wife on his second stay and we became fairly close. She said she thought she was doing the best thing for him because he was over weight. She only wanted a healthy husband. She apologized for being so quick when we met. I thanked her for actually educating me on this diet. I was not aware there was such a thing. I recently had one of my previous cooks post that she was going to do this diet and should she start with 20 grams or 30 grams. She has been a cook in the healthcare business for about 8 years so she understands the different diets but not the physiology behind them yet.

I am trying to talk her into taking the CDM course. I told her to consult the RD at her facility before she embarks on such a trend. I feed sick people for a living. I love being a CDM. I am grateful for the time I get to spend with the RD because I always learn something. I am saying before you start if you have ANY extenuating circumstances, please consult your doctor. Better yet, consult a RD. This is what they do! I think some folks are being rude and hard on here and I apologize for all of them.

If I could tell you how good it feels, you might understand. The choking dysphagia was not an issue until the second stroke. The TIA caused the aspiration. Yes, I believe it was the diet. If it works for you; Great! But this should never ever been tried on a man that was already sick, CBGs out of control and elderly to boot.

The wife said she got it from a website such as yours. There should be warnings posted that this is diet is not for everyone and for goodness sake talk to a professional before jumping on the trend bandwagon. It can cause and did irreparable harm.

This is why we need research before we recommend a keto diet based on opinion. Thank you for sharing this comment, Teresa. Yes, this diet needs medical professionals following you.

If anyone is on a keto diet, please have them enroll in a clinical trial so that we may study its effects further. Thanks for your comment. Sustainability is key and Keto diet is extremely restrictive compared to others. I have been on a low carb diet for over 2 years. I tried my doctors recommendations for about a year and took all the medications they told me to take.

So I fired him. No one can ever tell me ketosis and ketogenic diets do not work if followed correctly. It has saved my life. I am a former earth scientist as well as a current health consultant, so it would really help me to know the answer to this question I have that keeps me up nights: The vegan diet is one of them and one which also reduces risk in most other diseases better than the others — but it is by unquestionably by far the very best diet for the environment and the survival of the planet.

A vegetable diet will END world hunger because we DO have enough earth to grow enough vegetables for everyone and we definitely do NOT have enough earth for meat eaters even at current levels. So my question to all of you is: Not to mention the horrific conditions that the great great majority of animals bred for food endure?

Oh yes global warming is real and so is global cooling. About 3 years ago it was officially recognized that the earths axis has tilted a 10nth of a degree. It has nothing to do with mankind at all! I was going to have to take a second daily dose of Metformin and the first one already played havoc with the IBS. He had cut his insulin use literally in half and lost 15 pounds.

He was feeling better and visibly had more energy. I was resistant to the diet and even the idea of it. I have been on Atkins and Sugar Busters and while I did fine on Sugar Busters back in the day, Atkins was too fat-based and that was the opposite of how I had been raised to think about dieting. I knew that the Diabetic diet given to me by the Diabetic Educator had never been enough and I get carby binge cravings even though it offers plenty of carbs and calories.

On top of that, when my stomach hurts I seek carbs, and it hurts quite often. To be fair, just the act of tracking my food improved my outcome on either. Not that I made a practice of it, but it was principle of the thing.

Long story short, I was pretty doubtful that I would be very successful on Atkins or Keto. To humor my husband I began a low-carb diet that started out as Atkins 20 or Keto and has morphed to more of an Atkins for my personal comfort while using Keto, Atkins, and Paleo recipes and ultimately cutting all gluten.

That means net carbs per day, rather than per meal and a lot of natural non-processed foods. The first week was quite terrible.

I started to suspect that if I felt that bad just from quitting carbs that maybe there was more to the idea of sugar addiction than I wanted to believe. Even more than that, my IBS symptoms stabilized. I had my gall bladder removed and so have always put down my symptoms to an inability to process dairy and fats. Big surprise to find that a higher fat, higher dairy diet was making my symptoms disappear. Gluten is the only common factor so far.

Just a food sensitivity? It is an investigation that I would never have thought to start on the Diabetic diet. Luckily there are low-carb, no-gluten recipes for muffins and cakes. My husband let himself have a piece of cheesecake the other day and felt physically awful for two day after, plus he had to use a lot of insulin to counter the spike.

Just a side note but I had other symptoms of inflammation as well. My ankles were swelling to golf ball size and painful, it was difficult for me to stand and walk comfortably when this happened. Also, he was a smoker, a diabetic, had hemochromatosis and was over pounds with an apple body shape. Unfortunately, it looks like I need the lower carb version and will continue to need it to manage my symptoms. So for me, it has to be Very Low Carb for Life.

Others may find they need this too and discouraging them from trying it is not doing them any favors. Hopefully I will continue to find this sustainable. I just need to keep reminding myself that I am more fond of my feet and my vision than my birthday cake. We need more information on the keto diet to think of recommending it widely to patients.

There are clinical trials going on. Here is the link to one of them: I would also like to leave this clinical trial tool here. If anyone is interested in participating in clinical trials, this link is from JDRF.

These are for Type 1 Diabetes only. The tool will match you with clinical trials that you may be qualified to be a subject in. What specific nutrients are missed for anyone including pregnant women by exclusively eating plants, meats, nuts, seeds, healthy fats? I was hypoglycemic as a teen because I avoided eating most carbs because obesity and diabetes runs in my family.

After I had my baby I went back to avoiding carbs and got back from yo where I was before my pregnancy. I was once again scared that I was making a grave mistake and added in the carbs, I never should have.

The foods I eat are part of the ketogenic diet avocado, wild caught Alaskan salmon, greens etc.. But you are not in starvation mode ever in keto. You still eat like to calories per day depending on you caloric needs.

You lower your carbs count and increase your protein and fat count to compensate, while meeting your caloric intake needs. First I want to just say that I do appreciate that, as an educator, you were actually willing to discuss the keto way of eating.

However, it was very obvious from early on in the article that you have a bias against keto, and you let that bias reign throughout. I read through the article, and then through all of the comments…and there is one thing that seemed to be your battle cry: Sure, more studies will happen, and more information is always good. But, we KNOW that keto works. There are plenty of studies, both in groups and in individuals, that prove beyond any reasonable doubt that going on a proper keto diet WILL improve your life as a diabetic, and will often allow the person to reverse diabetes completely type 2, obviously.

Not to mention the weight loss and the myriad of other health benefits it provides. If you had never heard of gravity…how many times would you have to fall off of something to KNOW that gravity is a thing, and that you need to take it into account?

Sure, you might not understand it completely, but you KNOW that it works. Sure, more studies will come, and the new information will help us refine it, and we will learn how it specifically affects certain individuals in different ways…but the truth about the basics of it are all there, in the open, for all to see. Our society as an American , and our medical community, have preached for years that FAT is bad, and you should limit it.

Fat is not the enemy. But the truth is, for most of us, switching to keto was a life saver, and the thought of going bake to eating cake is almost repulsive. I was diagnosed with Type 2 diabetes back in June, They wanted to put me on a special diabetic diet, and have me take two medications. I had done previous personal research into ketogenic diets.

I also have a close friend who was diabetic, on meds, as well as medications for high blood pressure. He went on a ketogenic diet, and a few months later was off all of his medications. I told the nurse that I would not take the medications, and I would manage it with diet. They had me scheduled for a follow up in a month and a half, so I told her that I would do my own thing for that time, and if my numbers did not improve, we could discuss the medication further.

I went onto the ketogenic diet immediately, and within a few weeks felt much better. I had my follow up appointment as scheduled. When I had my blood tested at the next appointment, only 6 weeks later, my BG was at and my A1C was at 8. Just keep doing what you are doing. The medications seem to be working out well for you. The truth is though, her reaction is part of the problem.

They have been taught, and most have bought into the lie, that everything is better with medication. Medication is the go to. That is why we have so many health issues in this country. Many, if not the majority, of the medical issues we have could be done away with if we actually ate as we should. But no…we want cake. I know it is hard when you have been taught something, and believed it, and taught it to others…only to be shown that what you have been taught is not the end all be all that you were led to believe.

But, you can choose to ignore the truth, and continue to follow the incorrect path. Or, you can look at the facts, and realize that what you have been taught is not the truth…and you can take a new path, which will lead many to wonderful new lives.

Have you noticed that our obesity and diabetes have gone to epidemic levels? Keto has been around longer than anyone that is currently alive. It will be around long after all of us have died. Unfortunately, many will die because they are not willing to make a few changes.

Even though, for most, after making those changes, they never look back. I truly hope, for yourself, and your patients, that you take a better look at the facts that are out there. It really is life changing. Thank you for this comment. I keep telling people about this diet.

It is literally the best diet I have ever been on. I can eat good food, I feel full, my weight is dropping, I feel better and I can actually feel the difference. While it is great for a professional to be skeptical of emerging diet trends and lets face it, most diet trends are garbage peddled by snake oil salesmen , this one actually has science from some prestigious institutions behind it, not a marketing scheme.

I always try to explain keto to people in more visual terms. I set it up as this: To do this you have two fuel-types at your disposal: American diets are high in carbs, which is like throwing a bucket full of kerosene on that fire.

Will it keep the house warm? Sure, but it burns down fast so you have to keep throwing bucket after bucket on it to keep it going, consuming tons of kerosene, and you get these huge spikes in heat. It is much harder to control the strength of the flame, and thus much harder to keep the house at a constant, comfortable temp.

Coal, on the other hand, burns evenly, and continues to burn for hours. Not only that, but it is fairly simple to adjust the amount of coal you burn to keep the house nice and warm, but not hot, for extended periods of time. The only problem is, it is kind of a hassle to get it to start burning at first again, in the analogy we are assuming you are simply trying to light bare coal on fire, no aids.

But once it is started, maintaining it is no sweat. So what is the solution? You use a tiny bit of kerosene, which lights easy and burns hot, to get the coals started we need a few carbs, but not much. But what I think is funny is that the keto diet has been staring us in the face forever.

Look at Inuit tribes that survived off of blubber in a region that grows next to nothing most of the year. Here is an interesting link, however I find the conclusion disheartening and frankly more than a little suspicious. Doctors of diabetic patience always prescribe a low carb diet, but they stop at 40 carbs per meal. This was simply the best response to this article.

The doctor who wrote it has no idea of the life changing benefits of keto. Bravo to you for speaking up. Congratulations on reversing your diabetes. I dont have diabetes and am not obese but I switched to keto to live a longer healthier life. Must mention that I am I want to prevent disease. Let the food be the medicine. More adults get type 1 diabetes than children, yet the ADA promotes misinformation on it.

The worst part is that type 2 meds speed the progression of type 1. I have multiple autoimmune diseases. I finally went to the Jefferson Diabetes Center. All it takes is a simple blood test to look at antibodies. The good news is that you can slow the progression of LADA by years. How you might ask? My endocrinologist said it can add 2 years of pancreas life.

I eat dessert every single day. I forced my a1c down to 5. The keto diet is NOT what you seem to picture. I laughed at your description as I was eating lamb chops, cauliflower rice, broccoli, followed by cheesecake.

How deprived I was! You should relook at what the diet really is. By the way, my cardiologist highly recommends keto. Looking at total cholesterol or LDL alone is 20 years out of date!

Dropped my A1C and I feel great. There are so many studies and physicians, brain scientists, etc out here who understand what this diet is about. Read, and educate yourself…. Sugar, Wheat, Grains…horrible for us.

Get with it, we live in and the information is out there; if you need a list, just ask. It is hard for someone addicted to carbs and opiate mimicking lectins gluten to imagine living without them dominating their diet — but like all addictions there is hope.

The aim is far broader than suggested by the article here: Fasting puts a man into ketosis in 3 days and a woman by 2 days. Endurance exercise gets you there in a couple of hours. Eating a high fat diet will do it too. The aim is to switch on the full fat burning capacity and keep it running — which takes from between 4 to 12 weeks physical adaptation for the muscles to fully be able to use ketones. Once you have a Flexible Metabolism you can consume carbs during or after exercise without dropping out of ketosis — though this depends on your own bio-individuality.

I can eat quite a lot of carbs — without losing ketosis — my partner cannot. You have about , Kcals of fat available to burn — producing your own glucose in the process when needed for anaerobic bursts. The human body is specifically designed to run long distance and can outrun almost every other animal on this planet — we can even run though intense heat because we sweat. In nature, historically, there were very few ways to store carbs — which were available only for a short time seasonally.

The solution to this is that when eating the available fruit in the autumn the sugars switch off the fat burning system and then use insulin to store the sugars as body fat.

Carbs signal our body to go into fat storage mode. When the carbs run out then slowly the fat burning more resumes — first of all feeding ketones to the brain and other vital organs and then eventually to the muscles.

Next time you hear an idiot doctor telling you that the brain only burns glucose — walk away! I love this response. Great to see people that understand Keto well. How much research has been done on the prescribed ADA diet? Let me answer this very clearly, there is currently no cure for diabetes. Only you can take care of yourself.

The author wrote this out of angst because she failed at the ketogenic diet. You just have to learn to cook using stevia, almond or coconut flour instead of the white refined flours the author is addicted to. The information presented is false as well. The ketogenic diet has great benefits for the type two diabetic or prediabetic specifically. Watch some of Dr. Stay current Tammy, stop saying the same old stuff. You are treating the symptom, high blood sugar, not the disease, insulin resistance.

Seriously, If you have diabetes listen to a DOCTOR that treated so many diabetics with kidney disease he finally started looking for a solution and has found it.

Not old school Tammy Shifflet. I believe the specialist mentioned in your post is actually Dr. He offers excellent information on this subject. I have been a type 1 diabetic for most of my life. I live a very active lifestyle of long distance running and hiking. I no longer have the brain fog.

I sleep better and have more energy. I have been doing it for a year and have no desire to go off of it. I will say this: At age 51 I got back bloodwork; LOW testosterone levels, High A1C readings saying I was pre-diabetic, High cholesterol levels where they said next visit I was going on drugs for that too And a prescription for Metformin It felt like a death sentence. KETO is a lifesaver. Carbs are a poison NOT meant to be in your body read Dr.

Perlmutter — Grain Brain. This is ALL so confusing and overwhelming. I am not diabetic. I am trying to be proactive about it.

I am borderline obese by US standards and obese by Asian standards. I am 50 years old. I was addicted to fat and sugar especially combined! I guess I am what most would refer to as pre-diabetic metabolic syndrome.

Should I try keto or am I taking too much of a risk? I simply became convinced over time that this way of eating is the best way to limit the damage which can be done by a lifetime of exposure to the standard American high-carb, starchy, sugary diet. I love my fatty meat, egg yolks, butter, sour cream, and more. I have read about diet for a long time. They are not advocating whacky stuff.

Like commenter Jason above, I also want to thank the post writer for discussing the keto diet despite her training and biases. Takes some courage to do that. But I really have to take issue with one thing she said:.

The average lifespans of pre-industrial peoples is heavily reduced by infant and early childhood mortality, which has nothing to do with lack of fresh fruit. Once you remove this bias in the numbers, pre-industrials can have lifespans almost as long as ours. And usually without many of the degenerative diseases that bother our middle and old ages. But eventually started trying more aggressive treatment like Victoza and without fail in 4 years I was on slow acting insulin. I lost weight lowered carb intake to 40mg or less in the morning my breakfast has been no carbs.

People need to realize every diabetic is different you must manage it how it keeps you with good A1C levels. I myself got off insulin for a year and half but my fasting levels slowly increased again. Reversing diabetes is not possible. Reducing the effects is possible and more likely the better you monitor yourself and do what you need to do.

Depending on medications or diets or counting carbs will all help but not cure the diabetes. I have alot of "brain fart" as my friends refer to them moments. I can get very nausiated. I can get severe gas-type pains in my stomach and abdomin. My IBS is still not under control. It tends to run in a 2 week cycle: I also have ALOT of allergies. Seasonal, dust, cats, some dog, most pain killers - morphine, codeine, naprosyn, penisyllin among others.

I also get migranes. I find they tend to come only after eating high-carb, high sugar or sugar substituted foods, caffine, breads.

Laurasharpy Age 17 Symptoms: I was diagnosed after I had Mono and never seemed to get better after that I was still really tired and never regained my energy like I used to have. Lisa Female, age 42 Symptoms: I have Gilbert's, have battled severe PMS symptoms for 20 years or so. Now that I'm older 42 the PMS seems to be getting worse, especially headaches. Since my early 20's I'm 42 now I have suffered from monthly migraine headaches, depression, anxiety, panic attacks these are better now , obsessive thinking, bouts of itching, and fatigue.

I have headaches that last for days. My doctor prescribed Imitrex which is for migraines and is very effective. I find this to be a very strong drug, however, helps me get through the day at work. My symptoms were very similar to yours, very tired, heavy, spaced out, foggy headed, drunk like feeling, wobbly legs, and sometimes physical shaking… I went to see an endocrinologist who admitted me to hospital for two weeks to run some thorough tests.

But one thing that did show up in my blood tests results was that my level of cortisol in my body was too low. I have always struggled with my energy levels, especially when I had young children and a pretty hard back-to-the-earth lifestyle. I ate pretty healthy food throughout I'm particularly interested in the foggy brain and poor memory stuff on the website.

My daughter and I both suffer acutely from this and beat ourselves up about it, but I've never connected it with GS. Just thought it was another crummy thing she'd inherited from me! I have horrible memory too. I have to write everything down. Shopping can be a real problem I have to take a list, but writing the list can be a problem too.

Even conversation is a struggle recently, can't seem to be able to form whole sentences - forget whole words. So I've become withdrawn, don't tend to join in as much. It's as if there are several loose connections in my brain, sometimes they work and sometimes not I have to write everything down, especially the kids activities or I'd forget to collect them. I worry that one day I will, as I still have to try and remember to check my lists!

I was recently diagnosed with Gilberts after having too blood tests done on my liver with readings between Of late i have been feeling breathless and having a heavy feeling similar to that of asthma, but do not have the wheezing of asthma, and can still reach reasonable levels on a peak flow meter. My problem is with getting air in, not out. I had a toxic reaction to toner dust from laser printer which was malfunctioning in a non-ventilated area.

It took a year to figure out and another year to recover, mostly by my own research of symptoms and changing to as close to a zero fat, low protein diet to let liver work on toxins not fat and vitamin regimen. My 19 year old son has been diagnosed with GS. They even removed his gall bladder in June, and he is still suffering as I post this! He is an active college student, who is having problems attending class because of his stomach pains. The only thing that calms him down is constant showers.

I just had a hell of 3 weeks with real bad nausea. I felt like I was going to vomit but nothing came up. I know I have Gilberts syndrome, cos it came back with high bilirubin almost ten years ago when i had a sudden onset of dizziness and concentration problems and fatigue. This was said to be Post-viral fatigue syndrome or ME.

Now I am going through a bad patch again with fatigue and cognitive symptoms do u get brainfog I sometimes suffer from the same problem me: I first started to notice that I just couldn't stomach the beer anymore, and hangovers got unbearably long Now I have to avoid too much alcohol or junk food, or normally just leave it out altogether, else pay the price My main problems are indegestion, constant acid stomach and tiredness, with a lots of discomfort under the lower left rib I'm guessing this is my stomach as it's always worse after a meal?

Bloated stomach after eating too much or the wrong thing, and general short sharp abdominal pains during digestion, plus slight yellowing in the corners of the eyes when feeling rough. The fatigue is also a bind too, I need a solid 8 hrs sleep else I feel worn out. I have felt terrible, non-stop, for the last six months.

Here are some of the symptoms I have felt tell me if you can relate to this - terrible fatigue, mid afternoon I feel i NEED to sleep. Quite disturbing at times - dizzyness. I get palpatations too, and my blood pressure, EKG, and chest X-rays were all normal. MazG Age 35 Symptoms: My brain-fog has always been an issue. I used to say that it was like my head wasn't connected to my body. Sometimes I find it impossible to concentrate when holding a conversation or in a meeting its almost as if I don't even hear the other person talking.

Michael Age 25 Symptoms: Im 25 and was just diagnosed with GS after doing some blood work due to stomach problems. My question is does anyone feel strange after eating? Sometimes I feel fine but yet other times I get very bloated and feel wierd almost like I am getting tingling sensations in my arms.

Mike Age 24 Symptoms: Im 24 and just got diagnosed with gilberts. For a quite a while ive been throwing up all the time in the mornings, muscles ache all the time, im always tired.

Also it aslo explain why after a couple of beers i feel really pissed and get the mother of all hang overs. Mini Tay Age 19 Symptoms: I am 19 years old and I was diagnosed with Gilberts syndrome about in I began to feel tired and weak after working over Christmas, my doctor told me after one set of blood tests but did another to confirm it wasn't any other liver disease. At first the symptoms were just constant tiredness, which I put down to working a lot of overtime. As I had more and more experiences of GS I noticed that I felt paranoid when I was out in public, as if people were watching me and because I was also feeling slightly depressed this made me very unhappy.

MissCox Female, age 27 Symptoms: Back in January, I started to not feel well. I felt anxious and was getting extremely stressed. At times I'd feel nauceous, unmotivated, and I was starting to get depressed.

Usually the party girl, I was not going out at all, not organizing parties, and I was losing contact with friends. My boyfriend said he couldn't even remember what I was like when he first met me about 4 months before all this started.

I would say things to my boyfriend like, "I feel like I have bile running through my blood - I know that's impossible, but that's how i feel," or "I think I have Seasonal Affective Disorder, I feel better when the sun's out! One time I drank one glass of wine while out with friends. I felt like I had poisoned myself - I coudl feel it running through my body, and I felt awful.

I do get fatigued very easily, and sometimes I just have weird sensations - like it feels like my brain is cold. I still feel anxious sometimes, but now that I've learned that it's not becuase I'm crazy, it's because of something going on inside my body, I'm able to deal with it better. Recently we decided to paint our house and the night of I started experiencing GS symptoms.

I started getting abdominal pains and every time I would eat I would get sick for 3 days. My eyes turned yellowish and by the 3rd day I had no energy to walk down the hall. Moonie Female, age 22 Bilirubin readings: I have been so fatigued that I have been sleeping for 12 hours at a time and still have trouble getting up. My muscles are aching like a bad flu, and my glands are swollen in my neck. I have no infection, nor a viral illness that I am aware of. I have seemed to be getting episodes closer and closer together I am feeling really weird today with it seeming like the floor is moving up and down and back and forth.

I'm afraid that I'm going to fall or walk into a wall or something. Every time I get up I am so dizzy Now my muscles are twitching and I have a pins and needles sensation all over my body I have been getting awful esophagus spasms that squeeze all the way down into my chest, extreme fatigue and nausea, and also a headache when i am feeling this way.

Mnol Female, age 56 Symptoms: I was diagnosed about 7 months ago. It started with what I know now to have been a huge panic attack, something that had never happened to me in the past… Anyway, the fuzzy, numby and tired feeling would not go away, so the same week I went back to the doctor and he noticed I looked a little yellow.

I run 3 times a week, about 40 to 50 min sessions. Sometimes it wipes me out and other times it makes me feel great. I think it depends on what level my Bili is at.

I'm 33 and have recently been diagnosed with GS I think that eating lots of white wheat based products makes things worse for me, seem more foggy and find things more difficult to recall in my brain. The other day I had to ask my partner what the band that Freddy Mercury played in was called, and then 2 minutes later I had to ask him again When I am affected by this illness, I throw up about twice a day, and the symptoms go for about weeks. It comes and goes. I get extremely fatigued, and weak.

I can barely get out of bed to go to school. I also lose my period when this happens. Some of the symptoms I get from GS are: Vomiting- usually about 2 times a day. My bouts with the illness last about 3 weeks, and go away for about a month, and come back for about another 3 weeks. Fatigue- I get tired very easily. Getting out of bed is a big ask for me. Weakness- Lifting my head, or my arms and legs is extremely difficult. Sometimes I feel like I can't move, and that I'm immobile.

Dizziness- I feel very lightheaded, and feel like I'm continuously drunk I've always suffered from fatigue since my early teens. However, problems really kicked in when I fell asleep for two hours after eating a chocolate bar… I get most of the symptoms described by everyone else here: Fatigue some days I can't even move , Brain fog to the point where there are moments where I can't even remember the names of friends, pale yellow eyes, a digestive system which acts like a cement mixer and depression.

This has gotten worse over the years and had an effect on my vision. Especially in the morning. A kind of motion sickness feeling I always have breakfast too, even with this feeling. I am 22 years old. I was hit with gs this past summer as well as something called cmv. MY cmv is supposedly gone into remission so I am only dealing with GS now.

I have read this whole forum and I have experienced basically every symptom mentioned. I often feel so tired that even after 10 hours of sleep feel I could drop at any time, I also suffer frequent headaches at least twice a week which I always related to the tiredness.

I also get abdominal pains if I don't eat properly which I always put down to wind. Nilsth Make, age 24 Bilirubin readings: Female, age 45 Symptoms: My mother 45 also has GS.

She has been sick for 13 years. GS detected me when I was 22 years old. Yes, I have exactly that problem! But especially with short term memory like, "what happened this morning again? I've thought for a while that bread made me worse so it's good to see someone else has similar symptoms. But I'm also dislexic It seems to fluctuate from day to day.

Some days it seems I have a great memory and other days I can hardly remember my own name. About 18 months ago I started having episodes of what I have come to call my 'Dreaded'. Symptoms are extreme fatigue, a feeling of a black fog in my head and an irrational depressed and irritible mood.

Symptoms appear on waking, last between 1 day and eight days and then disappear completely overnight.. I have not been able to identify a trigger, although my two worst episodes were after a bout of flu last spring and then after a flu jab last autumn. I have had many episodes however that have just come out of the blue for no apparent reason.

Diaorrhea coincides with menstrual cycle mid cycle and during menstruation so may not be relevant to GS Symptons escalated 6 years ago coinciding with me giving up caffeine which apparently reduces bilirubin.

Have always struggled to recover from illnesses and viruses. I have troubles with common consumer products, like soaps, shampoo, laundry detergent, cleaning chemicals, etc.

So, I live a fragrance and chemical free life and practice isolation and avoidance. I wear a mask when I drive and venture out into the public for doctor visits, grocery shopping, etc. My social life is limited to the phone, TV and Internet. I first noticed my sensitivies to cigarettes. They always bothered me, but suddenly, they really became troublesome, and then more and more substances started to bother me, to the point where I am sensitive to just about anything now that is even slightly toxic.

I always used to be fairly irascible but now get very cross with people, whereas I used to be able to keep the lid on it. Also am fairly emotional and am easily moved to tears usually of frustration or self-pity: I'm not ashamed to admit , whereas formerly I would have committed ritual suicide rather than cry in public.

Paul Male, age 23 Symptoms: Yellowing of eyes and skin, fatigue and feeling weak after exaggerating on fat food or after taking drinks with a high rate of alcohol I also had some digestion and oesophagus problems in the last two months but with the aid of some digestion pills they seem to be going away. Paul B Moore Symptoms: Ive had GS for a few years and seem to have just about all the symptoms from yellowing eyes to leg tremors to IBS.

I am always tired, and almost never hungry, but I do eat a lot I am a teenager, just no appetite. Even the smallest amount of exercise fatigues me. I have had this symptom in conjunction with acid feeling in the stomach and feeling "bile" in the back of the throat. Since cutting out alcohol altogether 12 months ago I have had a vast improvement of all the Gilberts symptoms.

Also found doctors dismissive of Gilberts. I had glandular fever when a boy and have never felt brilliant since. Have frequently felt the "nagging infection that won't go away" feeling. Does anyone else get the horrible taste and sort of itchy furriness in the mouth? Do you ever feel like your tongue is swollen in your throat? I have problems recently trying to swallow vitamins - they get stuck. In the last year or so I have had a very dry throat.

I also get a very itchy throat and ears! I also had glandular fever I have dry throat, dry eyes, lips, and low saliva together with recurrent mouth ulcers I have been doing a Candida diet theory of yeast overgrowth in the body that can cause many symptoms - similar to those of GS!

I have had symptoms similiar to yours the past month and half. This is so wierd, how long this lasts. Mostly because of how long this has been going on.

I do not feel nausea now, but i feel tired alot and my mind I wanna go play soccer and run around, but my body is sluggish My symptoms seem to come in cycles now for the past 4 months… I well start to feel better for a week or two, then i well feel the GS type symptoms for a week Mainly when it starts i feel the fatigue, sluggishly, toxic feeling, then the anxiety or nervous feelings, then the stomach stuff.

Pj Age 30 Symptoms: SEVERE insomnia due to cold sweats and itching SEVERE night sweats Bed soaked, have to get up insommnia maybe due to other problems, but often wake up throughout the night Back and joint pain symptoms of swollen lymph glands, made me paranoid about many other conditions My ankles burn like hell if i stand up for more than a minute or so.

This is actually more annoying than any other symptom, and gets no sympathy from others. I have a varicose vein, but gp says not related, and it happens in both ankles. I was diagnosed with GS 12yrs ago when I was 18 and still have swollen lymph glands under my jaw and side of neck. My Dr advised that this was to do with my lymphetic system not being able to filter the bile correctly. Rainbowwarrior Female, age 19 Symptoms: I also get panic-attacs and anxiety triggers, but I'm not sure it's from gs.

In Italy I got really sick, with really vague symptoms. Felt awful tired, and really nauseous. Couldn't eat, except for some fruit. Didn't know what was wrong with me… Back in Holland I recovered a bit, but a few weeks later I felt really bad again. I was soooooo tired. My mother thought I had Pfeiffer so I went to the doctor, and he took some blood.

It seemed I had 'hay fever'. I was allergic to grass. He explained that that was the cause of my tiredness. I got some anti-allergic-pills forgot the name and indeed, it went better. Until a month or so later. I felt really tired and nauseous all the time, and after every meal I got sick and had to vomit.

It has been a long time ago since I really felt energetic. After eating I'm really really tired. I feel like I have to vomit, so I have to keep myself really calm, to get rid of that feeling. If I eat some time later my stomach really hurts. Then I have the feeling I just had a big meal, but my stomach is empty. This makes me feel depressed. The skin under my eyes and mouth is sometimes yellow. The corners of my eyes are usually yellow. Maybe because of the tiredness. When i had my child i toke jaundice and from then on i have sufferd from energy lose and sickness.

At one stage i droped to 7stone and had to give blood samples. When the results came back i was asked if iwas an achoilic because my white blood cells where raised. Then after more test they found i had gilberts syndrome. Ramakentesh Male, age 26 Bilirubin readings: Im exactly the same in terms of the cycle: My doctor was convnced i had an overactive thyroid due to sudden weight loss, tremors, brain fog, cold extremities, dizzyness, balancing problems, yellow eyes and a high bili count - but normal thyroid levels For years i have had slightly yellowish eyes - especially in the whites below my pupil.

I never worried about it because my doctor told me that there was no liver disfunction when i was From about onwards i suffered occasional dizziness, caffiene and alcohol interolance, and visual focusing problems.

I assume these were caffiene use related and ignored them, as i was generally quie fit and well. On the 22nd of October last year I went to bed feeling unusually tired.

Before doing so I had a shower and while there noticed that my left nipple was slightly swollen and sensitive to warm water. I didnt think much of it and went to sleep. I had pushing myself hard to get fit in the three weeks before this night. It was as if my chest was being smothered and i couldnt get enough air. My body was trembling furiously.

I went to the bathroom and realised that i was suffering visual disorientation - everything looked strange and double. I felt like i was trembling inside like a fever, but without the increase temperature and i was very pale - almost yellow. I went to emergency and had my heart and thyroid function tested and it all was apparently normal. They could find no reason for my condition and sent me home telling me that i was suffering 'anxiety.

One of my main symptoms was caffiene intolerance - it makes me feel duzzy and spaced out so i had to stop completely Other doctors have suggested electrolyte imbalances, chronic fatigue, strange viral infections, or just my mind the old i cant explain it therefore you must be going mad Yesterday I had felt alot of pain on my right side below my ribs and it hurts alot.

Sometimes when I'm sitting it dont hurt as much but If I move or am walking I have to be slightly bent over cuz it hurts. I cant lay down or much of anything else without it causing pain. I dont know if it'd just be gas or something else, I've tried some pills for indigestion but nothing works. I was in pain from walking alot just after dropping crutches after a tendon surgery and also hadn't eaten for hours.

It did feel like I was dying. After a meal and overnight sleep I was improved but it still took a few days to recover. Sorry I don't have a recovery solution better than that. Mostly what makes me feel crummy is fatty food or stress or poor rest… It is the worst about hours after lunch.

I have the same thing! I call them my 3 day hangovers! So I just dont drink anymore, I throw up for 1 day then sleep for 2 without eating at all. My reactions to anesthetic, my fatigue, and weakness if I don't eat, which seems much greater than the general population, and many, many other little things that fit in nicely with what I've learned here for example turning a bit yellow sometimes, intolerance to alcohol, and strange reactions to drugs as if I've taken much more than I really did take I had developed an allergy to garlic which I was taking daily, I didn't know about allergies at that time, so I was just too sick to eat.

The doctors said it was all in my head My head was too screwed up for me to figure it out for a long time, but finally some extensive allergy blood tests revealed it. I do have a natural tendency to allergy anyway, basically stuff like dust mite and almonds, but NEVER this many. I am a 29 year old woman just diagnosed with GS. I have experience rapid weight loss, stomach pain, fatigue and headaches Right now I am having more bad days than good and I would like that to change so that I may be more productive.

I have had symptoms similar to that of a diabetic for many years. Constantly low blood sugar, Shaking, Lethargy, Iritabilty and steatorrhoea. My blood results in the past have never shown anything specific, apart from this sudden revalation that I have Gilberts Syndrome. Im not sure how others feel, but i cannot function during an average day, my body has very low levels of energy and generally after ny form of excercise i tend to either collapse or notice the signs i.

Other things i have noticed are: Photosensitivity Sun light is very painful especialy during summer months Extreme Migrainous headaches, virtually every day Dry and itchy skin sometimes forming hive like reactions all over my body A worsening of all my symptoms during hot days and especially over the summer months. For years i have had the following symptoms: Apart from usual fatigue and pressure in the head Yes this tiredness is a problem for me too I can't drink alcohol like I used to I do get a bit depressed, maybe due to the usual Stress that everyone gets but the tiredness gets me down as I used to have bags of energy Also my eyes get a bit glazed over too Feelings of being irritable, not patient I used to feel quite light headed after exercise and thought I was unfit but maybe it was the GS thing.

I get a bloated stomach sometimes and depression but I try and keep positive about it. In November, whilst doing various DIY tasks around the house i started feeling hot, nauseous, dizzy and developed what felt like a hair caught in my lower throat. I went to the Doctor and said i was concerned about the throat and was given a course of antibiotics.

From 2 days in to the antibiotics my health has gone haywire. The nausea got stronger and it noticeable waves throughout the day, my eyesight deteriorated and when the nausea was strong i would see yellow flashing specks in my vision which would last for weeks at a time.

I struggled against whatever this was and tried to keep active but the effects got worse and my initial throat senstaion disappeared to be replaced with the most sore aching muscles frpm jaw to upper chest.

The sensation was of being physically strangled and then it would ease and I would find myself yawning continuously for 5 minutes. The whole of my mind and body had a feeling of being drugged on amphetamines. My sleep was poor, getting to sleep difficult and upon waking I felt totally groggy. Then I developed muscle aches, twitching and spasms down left leg and right arm to which the doctor prescribed drugs for shingles, not surprisingly this had no effect.

He surmised that I had been wiped out by a virus in November the antibiotics helping the virus and because I was run down and stressed I failed to fight it off properly. A thorough medical check-up a few year's ago identified that I'd inherited GS from my father. Recently though I've been experiencing some additional problems - abdominal pain seemingly caused by indigestion and now, a swollen thyroid on my right side. It's interesting that you mentioned itchiness. I haven't noticed this is a while, but years ago when I would run for a long distance and then stop my body would suddenly itch all over.

IBS, diarrhea, gluten sensitivity, swollen abdomen. I have had IBS for a long long time until realized that it wasn't normal to have diarrhea for years at a time. My bilirubin is generally 2. I always feel like my bowels are burning and swollen before a bout of IBS… I have GS and IBS and believe I have a sensitivity to gluten as well, because every time I eat bread it makes my abdomen burn and swell After getting an attack, my skin becomes pale and puffy, noticable around my face.

My eyes also sting, about an hour after the offending food. I get the twitching sensation right under my ribs on the right.

Sometimes it's a twitching, or a small pressure feeling. Sounds like gall stones. I am 40 years old, was diagnosed in my early 20s, but dont have any of those other hugely visable simptoms like vomitting, depression, fatigue, etc. Only the Yellow Eyes. I'm almost a year into studying a PhD, and have been increasingly worried about how little energy I've had recently. In December, completely without explanation I fainted while showering - now I realise that extreme dizzy spell could have been caused by GS.

I've been on anti-acne antibiotics, and had assumed those were making me feel itchy; again, now I think differently… I also had some bowel problems a few months back which have largely cleared up since I increased my fibre intake - and every now and then, my head has felt foggy, almost blank in fact.

Since I started showing signs of jaundice, this fogginess has got much worse, and I seem to forget random things occasionally too… I've had periodic bouts of depression since my teens. Sigilxx Female, age 18 Symptoms: As I read the thread further I've found that most symptoms of ME, especially sleep reversal, are also freqent in my life. Maybe I'll go to doctors with that too.

I also have are nausea, dizziness, brainfog, painful periods,immense discomfort in the ribs above my liver, white spots on my lower legs, a terrible depression that descends over me when I realise I have to think of something I can eat and in my case severe acid reflux. The other thing I've always suffered with is dodgy guts.

It doesn't take much to get them really rumbling especialy at night , with excessive wind and bouts of diarrhea. It's rare for me to have normal movements. Something I've got used to over the years. Bowel problems seem common in GS sufferers. I've always been thin, but have been at 11 st for several years now.

About 2 and a half years ago, over the space of a couple of days I began to feel very groggy, very fatigued and as if I was completely drunk. I had to stop driving for a few weeks but it very slowly came right… It was not until about a year and a half later, at a time that was very stressful, that the symptoms returned.

This time even worse. The drunk feeling was extremely debilitating , I couldn't think, could hardly see straight and could not drive again… I had another "attack" several months later was very low and sick… Part of the problem was that the only way I could describe my symptoms was as feeling really drunk all the time, and sooooooo tired, you body is not tired but kind of like my head was so tired.

It was one day that I skipped to meals that I noticed something weird. My senses had sharpened slightly and I felt more alert. But as soon as I ate, I suddenly felt very drunk again I was tested for allergies , blood sugar and hypoglycaemia Spackton Blake Age 16 Symptoms: I'm 16 and 2 weeks ago after drinking with my friends I was diagnosed with Gilbert's Syndrome.

I had stomach cramps, severe fatigue, loss of appetite and my eyes were yellow. I was really depressed because of this and I drank every day a lot of beer for 10 days because it was just 10 days of Ghentse Feast in my hometown Ghent. After those 10 days all the trouble began: I was really tired, I had like some weird fog in my head, a really weird fealing I never experienced before. I couldn't concentrate, fell almost asleep in the car, started crying every five minutes.

The doctor took some bloodsamples and noticed the huge amount of bilirubin in my blood like more than 10 times the normal amount I had GS which was not so weird because some in my mothers family also have it.

I did OK through high school but sometime around college I started having periods of time were I would go into a funk, where I would feel listless and depressed and had trouble sleeping. On average it might happen one month a year as well as an occasional days mood shift during the good times I hit my worst funk recently when I broke up with a girlfriend, who I thought I was going to marry.

I got some blood tests and found I had a high bile count. The first test was 1. I have had stomach problems and sleeping problems throughout the last weeks I have always had a hyperactive bladder.

I might urinate 10 times a day and might have a bowel movement times a day -- often twice in the first two hours after I wake up. Those numbers go up when I am stressed, like I currently am. I'm not sure what irritable bowel syndrome is exactly. I used to be the one person that people could tell something so that i would remeber it the next day..

It all started in Jan 7th with an attack of heart palpitation, head spinning tripping out feeling sweaty palms, head pains, couldn't walk properly or talk properly. Since then I have felt ill. I have had many tests done but all negative. Apart form my bilirubin of !!! As for physical symptoms, the worst is the debilitating cramping and vomiting that happens if I do not medicate at the very MOMENT I notice cramps starting.

I end up in bed for most of the day. Other annoying though not limiting symptoms include remarkable camel-like ability to retain water and breast tenderness. I wondered about libido, his libido is constantly at a low. If these toxins are in too abundant of supply, then your body starts to consider them an invader; it's something out of control in the body. I had this type of thing happen with certain carbohydrates to me. I too suffer from terrible memory for 4 years now.

I tend to speak very carefully now. My brain won't co-operate iwth my mouth to allow me to get the right words out or I simply forget what I was saying or the word I wanted to use I have found it very differcult to try and loose this excess weight. Excise just seems to make me more tired and so you just feel like not doing it to lesson the tiredness. I was diagnosed with G. S when i was 16,which funnily enough was when i started going downhill,Now My yellow eyes is something i hate,but really they are the least of my worries,its the chronic fatigue,and mental foginess that depresses me,at my worst episodes i feel like my blood is aching and that im being pulled down,i feel unreal,and after a week of that feeling,i start to lose it mentally,thinking i may not recover this time.

I am a 32 year old English teacher. My physical problems concerning Gilbert Syndrome started after I came down with mono. It took several months for me to recover from it, but when I did I started experiencing IBS and other digestive problems… The IBS continued sporadically over the next five years.

I tried to pinpoint a certain food that would trigger it, but nothing was consistent. This past summer was the climax of my Gilbert experience… I had difficulty digesting food.

This doctor told me the stomach pains must be stress related, and that I should find ways to decrease stress in my life. I thought this had some legitimacy, so I tried to change some things, but nothing improved. Then, this same doctor told me it might be gallbladder problems, and sent me to have some tests. No cysts, stones, or unusual developments were discovered. They then did tests of my digestive track, taking scans of food as it was processed. After two of these tests, and scoping down my throat, they found me to be perfectly healthy.

We ruled out allergies, food poisoning, and dietary influences. I was normal in all accounts except my bilirubin count, which was more than double the normal amount I have similar abdominal pain towards the right side just under my rib cage. The doctor thought it was gallbladder problems due to the location of the pain.

However, those tests came back negative. After I eat, I also feel great discomfort, almost like I'm going to explode, even if I only eat a little bit.

I find myself holding my stomach, or stretching to make room as if I'd eaten a huge Thanksgiving dinner. Afterwards, the food rumbles in my stomach and causes short burps and mild acid reflux. I feel like I'm going to throw up, but I don't.

It really is rather uncomfortable. The only source of comfort is to lay down flat on a couch. I was doubling up with stomach pain and vomiting, at the time I wasn't jaundice at all, just occasionaly tired. Its only recently, in the past couple of years, that my eyes are yellow all the time, sometimes completely, other times just around the edges. If I push myself when I'm tired my face goes yellow and my eyes feel like theres a cloud over them.

The tiredness can be very debilitating… My eyes are very sensitive to light, I have to wear sunglasses even if the suns out a little My temperature averages about I had my first dose of antibiotics for a simple ear infection at age 20 last year and ended up yellow, fatigued, loss of appetite, no energy and brain fogged My eyes are back to white, so im guessing my bilirubin levels are back down to normal - but i still have weird brain fog feelings in my head.

My boyfriend suffers, stomach cramps, severe nausea, vomiting for days on end, loss of appetite and jaundice. Yelloness of eye which increase upon exertion or if i miss a meal or at the end of the day when i am tired. The pain under the right ribs usually occurs at the end of work around 6 in the evening. I am tired and i feel miserable. I've gone into shock numerous times when I've overwhelmed my liver. For me it was alcohol, sleeping pills and a really deep massage When in shock, I get thirty, shiver, sweat, feel cold.

Water and protein help get over this. I still feel tired for a couple days after. IBS, nausea, tremors, bowel problems, gas, bloating, weakness, fatigue. Waialua81 Female, age 23 Symptoms: I was diagnosed about three years ago when I was 21 by accident.

I was having dinner with my mother and I was so jaundiced she made me go to the emergency room. I had thought I had GS for years before that occasion.

Like you I had been very sick with mononucleosis in high school and never really recovered. I was always yellow with high bilirubin levels but the doctors I saw never diagnosed it. My symptoms are all the same as yours me: I feel shaky if I don't eat regularly but sometimes I know if I eat I'll throw up!

My doctor had me have my gall bladder removed; he thought that was causing my jaundice and malaise and I had some small gallstones but it didn't help. If anything it made it worse as now there are very few things I can eat without being "sick"! I get muscle twitches all over as well, mostly in my arms, legs, eyes and back Since being diagnosed I've modified my diet and exercise and I've never been very big on drinking. These things have seemed to help, however, I have two big problems I have insomnia, so getting to sleep is not an easy task!

Normally, I require 9 to 11 hours of continuous sleep to feel "normal" with minimal yellowing, abdominal pain and other GS symptoms. In reality, I only sleep five to seven hours a night. I feel exhausted all day, but when I try to sleep I can't. I've tried taking short naps during the day but when I wake up I feel disorientated and "foggy". When I do get to sleep at night, the next morning I feel like I can't wake up. There have been many mornings when my fiancee has had to physically push or drag me out of bed!

I used to get headaches for days at a time, and found I had to resort to painkillers, if I was at work. If I was lucky and it happened to be the weekend, then a couple of huge glasses of water and a couple of hours extra sleep helped. I've found that I haven't had them though, since getting my inhalant allergies treated with weekly vaccines.

Will Male, age 24 Symptoms: I was diagnosed with Gilbert's Disease by my Gastro doc last summer I have learned alot about Gilbert's since then I feel ill for 4 or 5 days afterwards. I was recently diagnosed with GS Before I was diagnosed last year, I didn't know what was causing me to lose interest quickly in jobs. I'd lose ability to concentrate, I'd be irritable, anti social, withdrawn , It got to the point that I started a a small company so I could work for myself and therefore be able to set my own hours and schedules.

Zrxsheep Male, age 35 Bilirubin readings: Specific Symptoms In Detail. The discoloration of jaundice is most noticeable in the sclera, the nonpigmented thin skin such as the inner pinnae and caudal portion of the hard palate. Alexp from Gilberts Web says his doctor told him "I was told that if it went to 70 I would get Liver jaundice. Jimmy T Does anyone suffer from a 'foggy' head which can cause a variety of concentration-related problems some of them quite funny?

BaiCam I am 45 years old and was diagnosed with GS when I was approx 25 years old I say approx because I find it very, very hard to remember events and have experienced all of the symptons you have since I was about 14 years old. Up till that point I was considered very bright I still am but that is through sheer effort on my part!

I was becoming more and more forgetful, unable to recall conversations that I had had a day before and if something had happened more than a week prior then just forget it! If I was reading a factual account of something, I could read a whole page of text, understand every word but I simply could not retain any information unless I read the damn thing 3,4 or 5 times.

That is still the case today. That is where the effort comes in. My choice of career is a constant headache as it changes constantly and I am expected to 'know' everything related to that career. I refer to help files for routine that I have written dozens of times and should know of by heart. Sometimes I will go back to a database or a program I have written and I will not be able to recall writing the associated script!

I am unable to have decent conversations with people because I am simply unable to recall the everyday events that everyone takes for granted.

I get exhausted trying to listen to other people talking to me, I can't tell jokes because I simply cannot remember the tale in it's entirety, I tend to hold very short conversations to keep me sane and as a result , I am sometimes cosidered to be 'alloof' in my attitude. As a result I have a very small circle of friends.

Most people I know are considered to be 'acquaintances' rather than friends. The only thing that helps me is when I get a very, very good night's sleep. Then I wake up and 'attack the day' but otherwise I suffer as you do. This is exactly what it's like for me as well, and the brain fog is definitely the worst part of it all.

I wonder how much of my life has been a result of this? I used to be extremely bright, naturally, without effort. I excelled in all areas, especially math and english.

The slow decline from GS began probably in my mid 20s, and by now it is in full swing. My mind is foggy, clouded. Things that used to naturally occur to me get lost in the fog. The natural state is lying on the ground staring into space.

So any activity, like writing this, is an effort of will. My memory is terrible. I, too, often go into a room for something and completely forget what it was, the repeat this process. I have to leave myself notes and send myself emails so that I get done what I need to. Otherwise I'll just never think of it. Two days in a row this week I forgot to bring my lunch in to work, and only after posting a sticky note reminder in my car did I successfully remember to bring in lunch.

I was talking to some friends recently about college, and was hearing stories that I was a part of, as if I hadnt been a part of. They were only vaguely familiar to me. My friends were amazed that I couldnt remember it. Even events a day ago I have trouble remembering. I'd better look it up. I'm also a programmer, and I find myself constantly looking up functions I've used hundreds of times, having to constantly remind myself the syntax for very common things.

Socially, I find people able to bring a whole week's worth of interesting topics to the table, while I can remember nothing, and can barely keep track of the conversation. I also have only one or two close friends and the rest are aquaintances.

I couldnt handle any more! It appears SAMe and Dextromethorphan have a positive effect in this regard. Almost a complete fix. But at rare times I feel a little..

Red Bull also helps a bit. I think I'll have one right now, in fact. Brain fog is the symptom that got me researching into what was wrong with me back when I had candida. I had long been used to being a bit absent minded, but brain fog is a nightmare of not being able to think coherently. This also congests the liver, another major co-factor in brain fog.

If the liver, the filter for blood, is congested, it cannot take toxins out of the bloodstream fast enough. These toxins will pass the blood-brain barrier of the brain and deplete the brain of oxygen and glycogen.

The brain requires a steady stream of glucose and oxygen. Anything that interrupts this, such as poor diet, parasites, lack of essential fatty acids, minerals, poor circulation, hypoglycemia, diabetes, hypothyroidism, asthma or adrenal exhaustion, can cause brain fog. Another culprit that's gaining popularity is the high-protein, low-carb diet. If the body becomes overtaken by nitrogen proteins have nitrogen, carbs do not you'll actually become mineral and oxygen-deprived.

In this case of brain fog, breathe into a paperbag for about 5 minutes or less to flood the body with carbon dioxide. That will help replace oxygen and strip out excess nitrogen. Perhaps the tiredness and brain fog so many mention are closely related. I do experience these symptoms. Not so much now due to my diet changes I remember excuse the pun asking the doctor for my prescription script It was in my hand I seriously would forget the tiniest of things It sounds like brainfog to me I am so glad I don't get those annoying eye pushing head aches anymore..

More so at certain times than others. I have to make lists, and keep an army of sticky notes all around me. I often have trouble finding the right words, too. I'll be in the middle of a sentence, and know there's a word that perfectly expresses what I want to say next, but I cant for the life of me think of it.

I'll also fade out in the middle of a story and forget where I was going. We could maybe make some progress investigating other conditions that cause this and trying to find links to GS. I'll add my name to the list. I get awful headaches that last for days. At times they wont even respond to 2 doses of Advil or Aleve, like the one I'm having right now.

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